News release for immediate use
Chloe has a confidence-boosting wish following a devastating diagnosis that causes tumours to grow in her body
Seventeen year old Chloe Rush was diagnosed with Von Hippel-Lindau Syndrome in 2011 when she was 13 years old. This genetic condition causes tumours to grow and Chloe is living with eye tumours and two tumours in her brain. The condition has been devastating for Chloe and her family; Chloe has lost a lot of confidence and missed months of school. Like any other teenage girl, Chloe loves shopping and fashion, so Make-A-Wish® UK, the charity that grants magical wishes to children and young people fighting life-threatening conditions, granted her wish for a confidence-boosting makeover in London…
Chloe, from Luton, travelled to Oxford Street in a limo, which made her feel like a celebrity! On arrival at Topshop she was met by a personal shopper and tried on many outfits. She loved the fact that many of her purchases were exclusive to Topshop Oxford Street, as no one else back home has them. Chloe then visited Selfridges for a makeover and enjoyed choosing a variety of makeup to take home. She then had her very own photo shoot, which made her feel really special.
Mum Michelle said: “Chloe is usually very shy but the wish really brought her out of her shell. This has been really important for Chloe; due to her condition she has missed a lot of school, become quite depressed and lost a lot of confidence. However, following the wish Chloe realises that she can think of things she might like to do in the future. It has really boosted her confidence.”
The family knew something was wrong with Chloe when she started seeing black floaters in her eyes. When she was examined it transpired that the floaters were bleeding tumours in her eyes; she was taken straight to hospital and given the diagnosis. Chloe’s condition is especially rare as it is a new manifestation. She has had numerous operations on her eyes, major brain surgery and is also blind in one eye. Doctors are deciding whether to operate on the tumours in Chloe’s brain, as it could leave Chloe in a wheelchair. Coming to terms with this has been one of the lowest points of Chloe’s life.
Michelle continued: “Chloe is very scared of the future and doesn’t know what life will hold; however the wish has helped her live in the here and now, rather than worrying about what may happen to her. It was amazing to see her so happy after everything she has been through.”
In a recent Make-A-Wish survey of wish families, 85% reported that the wish experience made the wish child feel more positive or hopeful.
There are currently 20,000 children and young people in the UK fighting a life-threatening condition. In 2015 we want to grant 1,000 wishes and need to raise £7.5 million in order to achieve this. Make-A-Wish receives no government funding – so every donation really does count.
To make a donation or refer a child to Make-A-Wish please visit our website here: http://www.make-a-wish.org.uk or telephone 01276 40 50 70.
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For more information about this news release please contact:
Charlotte Capper: T: 01276 405093 M: 07557563214 E: firstname.lastname@example.org
Notes to editors:
- Footage of the wish can be viewed here: https://youtu.be/47YfWNBMGC0
- More photos available.
- Please note that Make-A-Wish does not use phrases such as ‘terminally ill’ in order to respect the sensitive nature of life-threatening conditions and what they mean to children and young people and their families. We would ask that this approach is followed and that the term ‘life-threatening conditions’ is used in material for publication.
- Make-A-Wish should be referred to as Make-A-Wish ® UK in the first instance. Thereafter ‘Make-A-Wish’ is suitable. We would ask that you try to keep
‘Make-A-Wish’ on the same line.
- Make-A-Wish grants magical wishes to children and young people fighting life-threatening conditions. The charity was founded in the UK in 1986. Registered charity number: 295672/SC037479 www.make-a-wish.org.uk.