News release for immediate use
Ned recreates the film ‘Mr Bean’s Holiday!’
12 year old Ned Hardy was diagnosed with severe epilepsy in 2008, when he was six. Since being diagnosed, Ned has watched the film ‘Mr Bean’s Holiday’, as he finds comfort in the humorous story and it provides him with an escape from the difficulties of his condition. So Make-A-Wish® UK, the charity that grants magical wishes to children and young people fighting life-threatening conditions, organised for Ned’s perfect wish…to relive the film on his very own trip to Cannes!
Ned, from Canvey Island, got the Eurostar to Paris with his family to start the journey through France. They took in the sights and visited places of significance from the film. After travelling to Montpellier, they picked up a Mini to travel to Cannes in true Mr Bean style! On route to Cannes they visited Millau which was featured in the film. When they arrived in Cannes they visited the place where the Cannes Film Festival takes place, as this is what Mr Bean had travelled to Cannes for in the first place!
Mum Julie said: “All parts of the film were made so tangible and the wish just kept giving. The trip was very positive for Ned; his smile broadened with every day and the experience helped him grow in confidence. It taught Ned that he doesn’t have to be so restricted by his condition.”
Ned’s seizures occur predominantly within sleep, whether this is during the day or night. However, most of the seizures occur at night which disrupts his sleep pattern. Ned’s dad has slept in a chair by his bedside for the past six years to protect him from injury. Doctors are currently trying to establish exactly what is causing the seizures and surgery may be considered depending on the outcome of investigations.
Julie continued: “The photos and the memories of the wish will give Ned strength to carry him forward during difficult times. We have had to deal with a lot of difficult times over the years, but the wish restored the balance and we were able to relax and have fun as a family.”
There are currently 20,000 children and young people in the UK fighting a life-threatening condition. This year, we hope to grant 900 wishes and need to raise £7 million to continue granting wishes in the future. Make-A-Wish receives no government funding – so every donation really does count.
To make a donation to Make-A-Wish please visit www.make-a-wish.org.uk or telephone 01276 40 50 60.
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For more information about this news release please contact:
Charlotte Capper: T: 01276 405093 M: 07557563214 E: firstname.lastname@example.org
Notes to editors:
- Ned’s video diary can be viewed here: http://youtu.be/KCZCmC4ddQk
- The family are available for interview.
- Please note that Make-A-Wish does not use phrases such as ‘terminally ill’ in order to respect the sensitive nature of life-threatening conditions and what they mean to children and young people and their families. We would ask that this approach is followed and that the term ‘life-threatening conditions’ is used in material for publication.
- Make-A-Wish should be referred to as Make-A-Wish ® UK in the first instance. Thereafter ‘Make-A-Wish’ is suitable. We would ask that you try to keep ‘Make-A-Wish’ on the same line.
- Make-A-Wish grants magical wishes to children and young people fighting life-threatening conditions. The charity was founded in the UK in 1986. Registered charity number: 295672/SC037479 www.make-a-wish.org.uk.