Ethan's wish is now fully fundraised thanks to his kind supporters. His supporters and this page will be updated once Ethan goes on his festive wish.
Ethan, aged 7 from Somerset, is living with severe epilepsy as a result of a very rare gene mutation – he has daily fits and his development, movement and communication have been affected by his condition, meaning he relies on 24/7 care from his parents.
Ethan wishes to go to Winter Wonderland and have a festive fun-filled day in London. Christmas is his favourite time of year because of the lights and the sensory experiences. Naomi, Ethan’s mum, says he misses out on so much but she hopes his wish will give him a day all for himself to do everything he loves.
Ethan was just four days old when he had his first seizure, Naomi had only brought him home from hospital that day. Initially his seizures were put down to 'infantile spasms' but then at 2 and a half years old he was diagnosed with severe epilepsy. Ethan recently had surgery to implant a nerve stimulator that sends electrical signals through his body every 5 minutes to limit the severity and frequency of his seizures. Every one of Ethan’s seizures puts him in danger, but his gene mutation is so rare, the treatment available is limited.
Ethan and his family go through a lot with countless trips back and forth from the hospital and caring for Ethan, but through all of this they are incredibly strong. They cannot wait to create some magical memories together and to see Ethan so happy. Naomi said “Ethan gives us strength to carry on, what he goes through is huge compared to what we deal with."
"Having a wish granted gives a child, and their family, experiences they would never have access to otherwise.” She added, “it's hard to plan things for poorly children, so to have this amazing thing to look forward to gives you a massive lift from the daily stresses and strains. It will give us time to enjoy just being a family."
Help make Ethan's wish a reality by sponsoring him today, you will receive updates on his One True Wish.